
Family Support and Healthcare Alliance Delaware (SHADE)
What is the Family SHADE Leadership Network (FSLN)? The FSLN helps:
Guide Family SHADE activities by providing feedback on resources and initiatives.
Build connections and engage with the community to identify and understand health needs and systems of care for children with special healthcare needs.
Build a community of knowledge and skills around leadership and advocacy. This is done through attending scheduled meetings, connecting with fellow parent advocates and participating in Family SHADE’s free trainings and events throughout the year.
Families can get involved in a way that works best for them.
Each tier has different membership expectations.
FSLN Co-Chair
Help lead Core FSLN meetings and participate in Core FSLN and Subcommittee activities
FSLN Subcommittee Member
Participate in Core FSLN activities and offer specific expertise related to one of the FSLN’s two committees: Transition to Adult Healthcare and Medical Home
Core FSLN Member
Serve as the voice of Family SHADE by attending meetings with fellow family advocates and engaging in Family SHADE events and activities
Member of the Public
Attend Core FSLN meetings and activies as you are able to stay up to date on all things Family SHADE
Meet the Family SHADE Leadership Network (FSLN) Leadership Team!
Tauheedah Muhammad
Co-chair of the Core FSLN
View Biography
Tauheedah (Tahita) Muhammad serves as Co-chair of the Core Family SHADE Leadership Network. As a parent of a child with Down syndrome, Tauheedah’s advocacy is deeply personal, shaping her commitment to supporting families, promoting inclusion, and helping individuals with disabilities access the healthcare and resources they need to thrive.
Tauheedah holds a Master’s degree in Healthcare Administration and Leadership and is a graduate of the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Program and Partners in Policymaking. She is also a Registered Dental Hygienist and college professor, bringing healthcare, education, and leadership experiences to this work. Tauheedah is passionate about empowering families to become confident advocates, ensuring their voices are heard, and strengthening connections within our FSLN community. Outside of advocacy and education, Tauheedah enjoys traveling, spending time with my family, and supporting her community.
Heather Holveck
Co-chair of the FSLN Medical Home Subcommittee
View Biography
Heather Holveck serves as Co-chair of the Family SHADE Leadership Network’s Medical Home Subcommittee. As the legal guardian and full-time caregiver to her grandson, a medically complex child with multiple disabilities, Heather brings lived experience navigating healthcare, Medicaid, private duty nursing, education, and disability services. Heather’s experiences caring for her grandson inspired a passion for family advocacy and ensuring caregivers have a meaningful voice in the policies and systems that affect their everyday lives.
Heather is especially passionate about improving access to home and community-based services, supporting medically complex families, and helping caregivers navigate systems that can often feel overwhelming. Beyond Family SHADE, Heather is actively involved in community advocacy and alongside other Delaware families, is building a “village” focused on connecting families with resources, information, support, and one another. In her free time, Heather enjoys crafting, spending time with her family, and, most of all, making memories with her grandson.
Monique White
Co-chair of the FSLN Transition to Adult Healthcare Subcommittee
View Biography
Monique White is the Co-chair of the Family SHADE Leadership Network’s Transition to Adult Healthcare Subcommittee. Monique is a keynote speaker, attorney, and healthcare leader whose career spans more than 30 years across nursing, law, and organizational leadership. Beginning her professional journey as a registered nurse in 1992, she served in emergency and critical care settings before advancing into supervisory and administrative roles. She later earned her Juris Doctorate and is a licensed attorney admitted to practice in the State of New Jersey and the United States District Court for the District of New Jersey.
Monique is a long-time member of the Family Shade Network, serving as a member of the Community Advisory Board and as a volunteer prior to her co-chair role. A proud mother, Monique is passionate about educating and advocating for patients, parents, and families to help them navigate the health system so that they may be empowered to make informed decisions.
Family SHADE 2026-2027 Events
September 2026
- Thursday, September 24, 1–2 p.m. (virtual): My Voice, My Health: Using Augmentative and Alternative Communication for Self-Advocacy in Medical Settings Learning Community Workshop · Register for the September 24 event
October 2026
- Thursday, October 8, 2026, 1–2 p.m. (virtual): Tips, Tricks and Timelines: Practical Ways to Prepare for the Transition to Adult Healthcare to Maximize Autonomy and Minimize Anxiety Learning Community Workshop · Register for the October 8 event
- Tuesday, October 27, 2026, 6–7 p.m. (virtual): FSLN Medical Home Subcommittee Meeting
- Tuesday, October 27, 2026, 6–7 p.m. (virtual): FSLN Transition to Adult Healthcare Subcommittee Meeting
November 2026
- Tuesday, November 17, 2026, 6–7 p.m. (virtual): Facilitating Successful Medical and Dental Visits Learning Community Workshop · Register for the November 17 event
January 2027
- Friday, January 15, 2027, all day (hybrid · Newark, DE): Family SHADE Summit Event
- Core FSLN Meeting (meeting time TBD)
- Learning Community Training (meeting time TBD)
To learn more, email familyshade@udel.edu or submit the FSLN interest form.
